Public Health Genomics (PHG) and Public Participation: Points to Consider
نویسندگان
چکیده
منابع مشابه
Framing genomics, public health research and policy: points to consider.
Genetic information can be used to target interventions that improve health and prevent disease. Indeed, the results of population genomics research could be useful for public health and national pandemic plans. Yet, firm scientific evidence originating from such research and the indicators of the role of health determinants, gene-gene and gene-environment interaction remain to be assessed and ...
متن کاملPublic Health Genomics (PHG): From Scientific Considerations to Ethical Integration
Recent advances in our understanding of the human genome have raised high hopes for the creation of personalized medicine able to predict diseases well before they occur, or that will lead to individualized and therefore more effective treatments. This possibility of a more accurate science of the prevention and surveillance of disease also illuminates the field of public health, where the tran...
متن کاملPublic health genomics--public health goes personalized?
Correspondence: Angela Brand, Director, Institute for Public Health Genomics (IPHG), Cluster of Genetics and Cell Biology, Faculty of Health, Medicine and Life Sciences, Maastricht University, Universiteitssingel 5, 6229 ES Maastricht, The Netherlands. e-mail: [email protected] . . . . . . . . . . . . . . . . . .. . . . . . . . . . . . . . .. . . . . . . . . . . . . . . .. . . . ....
متن کاملGenomics, Public Health and Identity
This paper questions the utility of the ethical principles that are usually invoked to deal with genomic issues, particularly genetic databases. Concepts such as solidarity, benefit sharing, equity, public participation, and collective identity are discussed. The author argues that genetic banks are precipitating new concern over group interest, as opposed to concern over issues arising from in...
متن کاملgenomics and public health research: can the state allow access to genomic databases?
because many diseases are multifactorial disorders, the scientific progress in genomics and genetics should be taken into consideration in public health research. in this context, genomic databases will constitute an important source of information. consequently, it is important to identify and characterize the state's role and authority on matters related to public health, in order to verify w...
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ژورنال
عنوان ژورنال: Journal of Deliberative Democracy
سال: 2020
ISSN: 2634-0488
DOI: 10.16997/jdd.78